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Many lymphatic professionals and patients are frustrated by the lack of medical awareness and resources for Lymphedema, especially at a local level. YOU CAN CHANGE THIS LACK OF LOCAL SUPPORT. The LAF's goal is to provide education, support and resources to where people live. We invite dedicated people to gather local lymphedema related resources and be a single point of contact, to share education/treatment resources and support for therapists, vendors and patients. Contact: lafinfo@elymphnotes.org to make a difference in your community.
The Dorton Directory
In Honor of the Late Jeff Dorton, Edited by Debbie Rahmoeller.
Jeff was born with primary Lymphedema. In 1996 he fell at work and triggered secondary Lymphedema. Although he saw a number of doctors over the years, none of them ever mentioned the word Lymphedema. In December of 1998, Jeff was diagnosed with stage III Lymphedema and soon started CDP therapy. Because so much time passed without proper treatment, Jeff’s lymphedema progressed to the point where it was nearly impossible to treat, and he spent years in hospitals and long-term care facilities. This did not stop him from promoting Lymphedema Awareness and support. He gathered related and closely related resources to assist with the daily self care of lymphedema management and was the webmaster for eLymphNotes, since the first issue. On Friday, April 30, 2004, Jeff passed away peacefully in his sleep.
The Fran Glossary
A permanently growing glossary of terms for the professional or lay-person. This glossary is managed by Ms. Fran Davila-Aponte, a Lymphedema Patient and Activist in central Florida, USA. We encourage readers to send in terms with descriptions or email Fran to include those that are not listed at fdavila@elymphnotes.org
The LAF Patient Fund
Submit your resource(s) to resources@elymphnotes.org. |
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